To Love and Cherish All the Days of Your Life
AUSTIN, TX – September 7, 2018
A girl from Austin suffers from a most rare genetic disease — progeria of childhood, or Hutchinson — Gilford syndrome.
Hutchinson-Gilford Progeria syndrome is a rare, progressive genetic condition characterized by the dramatic, rapid appearance of aging in childhood. Children with Progeria typically look normal at birth and during early infancy, but their growth was slow compare to other children and do not gain weight at the expected rate. It is not inherited, or passed down in families. They develop a characteristic facial appearance which includes growth failure, prominent eyes, aged–looking skin, a thin nose with a beaked tip, thin lips, a small chin, and protruding ears. Progeria syndrome also causes alopecia, stiff joint, and a loss of subcutaneous fat. Progeria does not disrupt intellectual development and motor skills such as sitting, standing, and walking. People with Progeria syndrome experience severe hardening of the arteries beginning in childhood and increases the chances of having a heart attack or stroke at early age. Life expectancy in children with Progeria is only 13 years.
Adalia Rose does not fall into despair, moreover, she inspires millions of other people who are her followers on Facebook and YouTube.
"I love to play with Barbie and games on the phone, and I still adore watching different videos," says the girl. She makes videos of herself doing makeup or just talking about her life. Many write that they admire her positive attitude to life and courage. Adalia's parents, they said, never even talked about what she is waiting for. "We just live day by day," says the girl's dad.